Resources

Over the years, I have researched and gathered the following resources related to caregiving. These are selected practical tools and resources to help develop your caregiver support, education and respite services. They are categorized into four main sections: Emerging Best Practices, Program Resources, Assessment Tools and Research.

Emerging Canadian BEST PRACTICES.

The following are several recommended best practices to support the caregiver as ‘partners in care.’ While this is not an exhaustive list, it does reflect readily available Canadian best practices that are based on systematic reviews, have been piloted and evaluated, provides supporting resources and tools for implementation, clear authorship and sponsorship, and published in the last 10 years. In addition, the best practices explicitly recognized caregivers in the recommendations.

Alzheimer’s Society of Canada, 2011, Guidelines for Care: Person-centred care of people with dementia living in care homes.

Canadian Coalition for Seniors Mental Health

  • Guideline on the Assessment and Treatment of Delirium in Older Adults at the End of Life, 2010
  • Assessment and Treatment of Delirium, 2006; Updated 2014
  • Assessment and Treatment of Depression, 2006
  • Assessment and Treatment of Mental Health Issues in LTC Homes, 2006; Updated 2014
  • Assessment of Suicide Risk and Prevention of Suicide, 2006

CanChild Centre for Childhood Disability Research, 2009, “The Best Journey to Adult Life” for Youth with Disabilities: An Evidence-based Model and Best Practice Guidelines for the Transition to Adulthood for Youth with Disabilities.

Centre for Addiction and Mental Health, 2004, Best Practices for Family-Centered Care.

Hollander, Marcus and Michael J. Prince, 2007, “Organizing Healthcare Delivery Systems for Persons with Ongoing Care Needs and Their Families: A Best Practice Framework,” Healthcare Quarterly, 11(1) 2008: 44-54.

Lindsay MP, Gubitz G, Bayley M, Hill MD, Davies-Schinkel C, Singh S, and Phillips S, 2010, Canadian Best Practice Recommendations for Stroke, Section 6.1 – Supporting Patients, Families and Caregivers, Canadian Stroke Network and the Heart and Stroke Foundation of Canada.

Mental Health Commission of Canada, 2013, National Family Caregiving Support Guidelines.

Parkinson Society Canada, 2012, Canadian Guidelines on Parkinson’s Disease, Section 1: Communications.

Registered Nurses Association of Ontario (RNAO) Best Practice Guidelines

Saint Elizabeth Health Care, 2011, Caregiver Education and Supports: Promising Practices for Empowering Caregivers.

Wilson DM, Birth S, Sheps S et al., 2008, “Researching a Best-Practice End-of-Life Care Model for Canada,” Canadian Journal on Aging, 27(4):319-330.

PROGRAM Resources.

Canadian Caregiving Program Resources

BrainXchange

Centre for Studies in Aging & Health, Caregiver Burden

The Geriatrics, Interprofessional Practice and Interorganizational Collaboration (GiiC) Initiative: Caregiver Support

Saint Elizabeth, Caring for Caregivers Resource Centre

Supporting the Caregivers of Seniors through Policy – The Caregiver Policy Lens and Resource Guide

VON Canada – Caregiving

Canadian Program Resources – Reports

Risk Factors Associated with Negative Outcomes Among Family Caregivers, 2008

The Obstacles to Learning about Caring for Elders in Canada, 2007

Respite for Family Caregivers: An Environmental Scan of Publicly-Funded Programs in Canada, 2005

Respite as Outcome for Family Caregivers – Policy Recommendations, 2004

The Information Needs of Informal Caregivers Involved in Providing Support to a Critically Ill Loved Ones, 2003

International Caregiving Program Resources

Innovations Clearinghouse on Family Caregiving: Programs, Public Policy and Technical Assistance for Professionals

Family Caregivers in Cancer: Roles and Challenges, 2011

National Association of Social Workers (NASW), Standards for Social Work Practice with Family Caregivers of Older Adults, 2010

American Psychological Association, Caregiver Briefcase, 2010

Professional Partners Supporting Family Caregivers – Phase II: Implementing Best Practices, 2009

Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships, 2009

Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework, 2008

State of the Science: Professional Partners Supporting Family Caregivers, 2008

Practical Tools and Resources for Caregivers and Professionals, 2008

Partnering with Patients and Families to Design a Patient and Family-Centered Health Care System: Recommendations and Promising Practices, 2008

Supporting Carers: An Action Guide for General Practitioners and Their Teams, 2008

Ahead of the Curve: Emerging Trends and Practices in Family Caregiver Support, 2006

Caregiver Education and Support Programs: Best Practice Models, 2004

ASSESSMENT Tools.

The following are a few Caregiver Assessment Tools and Resources that I recommend and have used in programs. For a full annotated bibliography of Caregiver Assessment Tools, go the Caregiver Toolkit – Assessment Tools.

InterRai Assessment Tools

This suite of tools is the sector standard and each include a section on ‘informal and social support’ that is critical to meeting the care needs of seniors. Dr. John Hirdes is the senior Canadian Fellow and a board member of interRAI. He is also a professor and chair of the Ontario Home Care Research Network at the School of Public Health and Health Systems, University of Waterloo. A video of him talking about the Role of the Family Caregiver can be found on the Change Foundation website.

Canadian Caregiver Assessment Tools and Resources

Family Caregivers Support Agreement (FCSA) Tool/Entente sur le soutien aux proches aidants (ESPA) , 2011

The C.A.R.E. Tool and Caregiver Risk Screen, 2006 Kingston Caregiver Stress Scale, 2007

Canadian Elder Abuse Tools and Resources

Elder Abuse Suspicion Index (EASI), 2011

Caregiver Abuse Screen (CASE), 2010

bridging aging and women abuse – a toolkit: A resource for service providers working with older women experiencing abuse, 2009

Prevention of Elder Abuse Policy and Program Lens

Selected International Caregiving Assessment Tools and Resources

Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners, 2012

Caregiver Self-Assessment, 2008

What Do I Need as a Family Caregiver? (self assessment), 2008

Caregivers Count Too! An Online Toolkit to Help Practitioners Assess the Needs of Family Caregivers, 2006

Canadian RESEARCH.

Canadian Caregiving Research and Knowledge Networks

Canadian Caregiving Researchers List, Canadian Caregiver Coalition, 2011

BrainXchange

Canadian Research Centres on Aging

Centre for Studies in Aging & Health, Geriatric eToolkit

Canadian Research Network for Care in the Community

Seniors Health Research Transfer Network (SHRTN)

 

Last Updated: December 2014