Over the years, I have researched and gathered the following resources related to caregiving. These are selected practical tools and resources to help develop your caregiver support, education and respite services. They are categorized into four main sections: Emerging Best Practices, Program Resources, Assessment Tools and Research.
Emerging Canadian BEST PRACTICES.
The following are several recommended best practices to support the caregiver as ‘partners in care.’ While this is not an exhaustive list, it does reflect readily available Canadian best practices that are based on systematic reviews, have been piloted and evaluated, provides supporting resources and tools for implementation, clear authorship and sponsorship, and published in the last 10 years. In addition, the best practices explicitly recognized caregivers in the recommendations.
Alzheimer’s Society of Canada, 2011, Guidelines for Care: Person-centred care of people with dementia living in care homes.
- Guideline on the Assessment and Treatment of Delirium in Older Adults at the End of Life, 2010
- Assessment and Treatment of Delirium, 2006; Updated 2014
- Assessment and Treatment of Depression, 2006
- Assessment and Treatment of Mental Health Issues in LTC Homes, 2006; Updated 2014
- Assessment of Suicide Risk and Prevention of Suicide, 2006
CanChild Centre for Childhood Disability Research, 2009, “The Best Journey to Adult Life” for Youth with Disabilities: An Evidence-based Model and Best Practice Guidelines for the Transition to Adulthood for Youth with Disabilities.
Centre for Addiction and Mental Health, 2004, Best Practices for Family-Centered Care.
Hollander, Marcus and Michael J. Prince, 2007, “Organizing Healthcare Delivery Systems for Persons with Ongoing Care Needs and Their Families: A Best Practice Framework,” Healthcare Quarterly, 11(1) 2008: 44-54.
Lindsay MP, Gubitz G, Bayley M, Hill MD, Davies-Schinkel C, Singh S, and Phillips S, 2010, Canadian Best Practice Recommendations for Stroke, Section 6.1 – Supporting Patients, Families and Caregivers, Canadian Stroke Network and the Heart and Stroke Foundation of Canada.
Mental Health Commission of Canada, 2013, National Family Caregiving Support Guidelines.
Parkinson Society Canada, 2012, Canadian Guidelines on Parkinson’s Disease, Section 1: Communications.
Registered Nurses Association of Ontario (RNAO) Best Practice Guidelines
- Client Centred Care, 2002
- Establishing Therapeutic Relationships, 2002
- Supporting and Strengthening Families, 2002
Saint Elizabeth Health Care, 2011, Caregiver Education and Supports: Promising Practices for Empowering Caregivers.
Wilson DM, Birth S, Sheps S et al., 2008, “Researching a Best-Practice End-of-Life Care Model for Canada,” Canadian Journal on Aging, 27(4):319-330.
Canadian Caregiving Program Resources
Canadian Program Resources – Reports
International Caregiving Program Resources
State of the Science: Professional Partners Supporting Family Caregivers, 2008
The following are a few Caregiver Assessment Tools and Resources that I recommend and have used in programs. For a full annotated bibliography of Caregiver Assessment Tools, go the Caregiver Toolkit – Assessment Tools.
InterRai Assessment Tools
This suite of tools is the sector standard and each include a section on ‘informal and social support’ that is critical to meeting the care needs of seniors. Dr. John Hirdes is the senior Canadian Fellow and a board member of interRAI. He is also a professor and chair of the Ontario Home Care Research Network at the School of Public Health and Health Systems, University of Waterloo. A video of him talking about the Role of the Family Caregiver can be found on the Change Foundation website.
- Home Care
- Palliative Care
- Community Health
- Community Mental Health (CMH)
- Post-Acute Care (PAC)
- Assisted Living
- Quality of Life
Canadian Caregiver Assessment Tools and Resources
- Journal Article: A partnership approach to service needs assessment with family caregivers of an aging relative living at home, 2010
Canadian Elder Abuse Tools and Resources
Elder Abuse Suspicion Index (EASI), 2011
- Journal Article: Development and validation of a tool to improve physician identification of elder abuse: the Elder Abuse Suspicion Index (EASI), 2008
Selected International Caregiving Assessment Tools and Resources
What Do I Need as a Family Caregiver? (self assessment), 2008
Canadian Caregiving Research and Knowledge Networks
Canadian Caregiving Researchers List, Canadian Caregiver Coalition, 2011
Last Updated: December 2014